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Advance Care Planning - My Wishes, ReSPECT Plan, Anticipatory Medications

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NHS Herefordshire & Worcestershire Integrated Care System Academy Exchange
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PEoLC Resources
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Advance Care Planning - My Wishes, ReSPECT Plan, Anticipatory Medications
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Date:
Thursday, 5 February 2026, 4:51 AM

Table of contents

Advance Care Planning

Advance care planning (ACP) is a voluntary process. It gives patients an opportunity to share their wishes and preferences for future care, based on what matters most to them. Documenting this helps guide future health care. This can be important if you become too poorly or are unable to make or express choices at the point of care.

People who have completed advance care planning tell us how it reassures them to know that their individual wishes are documented and how this can influence their personalised care.

Advance care planning also supports friends and family during times of crisis, by ensuring that those important to the patient can see preferences for care, relieving them of the burden of uncertainty. 

This process may involve more than one conversation over time and can be with whoever the patient wants to involve.

Herefordshire and Worcestershire - Dying Well (icb.nhs.uk) has a short introduction to advance care planning where you can find some helpful videos.


Why Plan Ahead? - NHS

 


 




 

My Wishes

Advance statement about your wishes - NHS

Final 12 Advance Statement PDF

A small number of hard copies are available and have been distributed to local providers.  If you require signposting to hard copies, please contact PEoLC team at ICB. M.carpenter@nhs.net


My Wishes Easy Read Information

Universal Principles For Advance Care Planning Easy Read

Coming soon:

Digital version on patient portal which will be completed by patient electronically and shared as pdf.

Patient Portal :: Herefordshire and Worcestershire Integrated Care System






ReSPECT Plan

ReSPECT stands for Recommended Summary Plan for Emergency Care and Treatment.

ReSPECT is a national initiative which documents individualised recommendations for a person’s clinical care in emergency situations when they do not have capacity to make or express choices.

Such emergencies may include death or cardiac arrest but are not limited to those events. The process is intended to respect both patient preferences and clinical judgement. The agreed realistic clinical recommendations that are recorded include a recommendation on whether or not CPR should be attempted if the person’s heart and breathing stop.

1.Joe’s ReSPECT journey - Joe's ReSPECT Journey videos, a ReSPECT explainer for healthcare professionals.



2. Examples of completed ReSPECT Forms v1-4. Four examples of how to complete the new ReSPECT form for patients.

•Joe’s ReSPECT Journey- a ReSPECT explainer for healthcare professionals 
The ReSPECT process creates personalised recommendations for a person’s clinical care and treatment in a future emergency in which they are unable to make or express choices.
Follow Joe’s journey through the ReSPECT process, and watch how he develops a plan with healthcare professionals that respects his wishes and needs.

This video is aimed at healthcare professionals who may need to support patients who have or want a ReSPECT form.


•ReSPECT guide for clinicians - A Guide from the Resuscitation Council UK for clinicians completing the plan.

Guidance-for-Clinicians.pdf

ReSPECT useful phrasing when writing a plan

•Dying for Beginners/ Dr Kathryn Mannix

A short animation by Emily Downe, and voiced by Dr Kathryn Mannix which guides you gently on a step by step journey through the process of dying

•Heart Stopping Moments

Dr Kathryn Mannix draws upon her life's experience as a Palliative Care Physician to explain 'ordinary dying' and why CPR is both important and when an appropriate course of life saving action


Respect Top Tips

ReSPECT Top Tips







Anticipatory Medications

Anticipatory prescribing or ‘just in case’ medicines is a key component of high-quality end-of-life care. It ensures that patients can receive prompt relief from distressing symptoms at any time, particularly when oral medications are no longer effective or appropriate.

Advance care planning should routinely include anticipatory prescribing to avoid unnecessary delays in symptom management. Having the appropriate medicines and administration charts readily available in the patient’s home enables timely care and supports a more comfortable and dignified end-of-life experience.

An audit of PCN prescribing identified a variety of medicines, doses, strengths and frequency were being prescribed. This highlighted a need for recommendations and guidance for generalist prescribers, who may only prescribe anticipatory medicines infrequently.

Generalist and specialist palliative clinicians have collaborated to create an EMIS prescribing protocol and supporting documents, which are designed to improve symptom control for patients who are at End-of-Life, to enable more timely administration, more equitable access and to reduce prescribing and administration errors.

The anticipatory medicine protocol is for use by PCNs and OOH providers in Herefordshire and Worcestershire, or anyone who is prescribing anticipatory medicines for patients in their own home or a community residential setting.

The prescription and prescription chart are generated digitally through EMIS Web, or the protocol can be imported into a compatible system. The protocol at the point of use with the patient, is a paper process and copies of documents are left in the patient’s home.

 

Anticipatory Medicine Protocol

2 Elements

  1. EMIS web or imported prescribing protocol – generates digital prescription & prescription chart to be printed or emailed

  2. Supporting guidance and administration documents - ALL to be printed as a pack and left in patient’s home
    1. Prescriber and Administrator Guidance for Subcutaneous Anticipatory Medications PRN & Syringe Pump
    2. Administration Record for Subcutaneous PRN Medicines
    3. Administration Record for Syringe Pump Medicines
    4. Syringe Pump Observation Chart
    5. Record of Medicine Stock

The prescribed medicines may include a dose range. 

Appropriate training needs to be completed through your training provider. 

Seek guidance from a prescriber & never administer outside of your competence.



Supporting Guidance & Administration Documents – Version 1.0 in use – ALL NEED TO BE PAPER COPIES IN PATIENT’S HOME

  • A completed chart is generated through EMIS Web protocol (or systems with protocol imported) - printed at source or emailed to administrator for use in patient’s home. 
  • Prescription chart has 2 sections.  Section 1 – As required drugs & Section 2 – continuous subcutaneous infusion via syringe pump.  Both should always be available to allow prescribing directly onto the chart in the patient's home. 
  • It is the only prescription chart to be used in the community for anticipatory medicines. 
  • Outside of EMIS web or systems that have not imported the protocol, it can be used as an editable pdf or printed as a blank chart to be handwritten.

2. Prescriber and Administrator Guidance for Subcutaneous Anticipatory Medications PRN & Syringe Pump (pages 1-4)

  • Guidance contains information available to EMIS web or imported protocol users around medicines recommendations, links to guidance, pharmacy stockists and Specialist Palliative Care (SPC) contacts details.
  • Guidance should be available in patient’s home to inform administrators & prescribers who do not have EMIS Web protocol access.

  • A new page 5a should be commenced every 24 hours from midnight.
  • Additional pages for the same 24 hours require page numbering – 5 b,c etc.
  • Requested by administrators to allow calculating total dose of medicines easier & reduce administration errors through miscalculation.

4. Administration Record for Syringe Pump Medicines (page 6)

5. Syringe Pump Observation Chart (page 7)

6. Record of Medicine Stock (page 8)


Organisation & Administrators Responsibilities

  • Each organisation will provide training and education to registered clinicians who administer anticipatory medicines through established education processes
  • Guidance includes prescribing medicine dose ranges for improved timely symptom control
  • Registered clinicians who administer should not administer outside of their competence or if they have not received education or training around assessment for dose range
  • Support and advice should always be obtained and documented
  • Any updates on version will be agreed as a working group and organisations advised to update to current version
  • Individual organisations will be responsible to update systems & clinicians.

Patient Information